Hunderttausende Familien kämpfen: Der Tag der Kinderhospizarbeit in Hessen!
Hunderttausende Familien kämpfen: Der Tag der Kinderhospizarbeit in Hessen!
On February 10, 2025, the “Day of Children's Hospice Work” will be celebrated in Germany. This day is said to indicate the difficult situation of around 100,000 children and adolescents who suffer from life -shortening diseases. The great burden that these diseases for the families affected is alleviated by volunteers, the support and relief. So reports hessenschau.de that these helpers play with the sick children, which gives parents valuable time for other tasks.
在黑森（Hesse）中，计划在这一天计划庆祝志愿者的宝贵工作，并提高人们对有关家庭挑战的认识。下午，将在法兰克福形成一条人类连锁店，而在达姆施塔特，电影院圆顶上则显示了电影“这部愚蠢的心”，然后与儿童临终关怀医院和家人进行了交谈，促使South Hesse服务。黑森（Hesse）唯一的住院儿童临终关怀医院是贝伦赫兹·威斯巴登（BärenherzWiesbaden），他在汽车天线上分发了绿色韧带作为当天的标志，因此，这些行动中的捐款将用于支持家庭。
the reality for affected families
The situation of the families concerned is often characterized by extreme isolation and despair. Emil, a three -year -old boy, is an example of the challenges that many families have to face. A genetic defect suffers from severe restrictions and needs care around the clock. After a year of isolation, his parents contacted the German Children's Hospice Services.根据 deutsche- hinderhospiz-sospiz-dienste.dienste.den.de.de ，伴随着100,000个儿童。 services.
Thorsten Haase, Managing Director of the German Children's Hospice Services e. V., emphasizes that the actual number of affected families is likely to be even higher than the officially recognized 50,000. In addition, over 96,000 affected children live in a social dark field, which increases their isolation.家庭部长丽莎·帕斯（Lisa Paus）已确认受影响的大约100,000个家庭的数量，并强调许多人没有了解他们的权利和辅助要求。
The need for support structures
The existing help structures are often not enough to meet the legal right to support. There is a significant need for clarification and many families are afraid to use the free offers. The German Children's Hospice Services therefore call for an improvement in financial and structural framework conditions.他们的目标是在2035年之前创建基于需求的儿童临终关怀，以阐明受到96,000多个家庭的黑暗领域。
除了支持要约外，德国儿童临终关怀学院还提供研讨会和讲习班，以便为家庭提供一个框架，使他们可以交流想法并反思他们的生活状况。 These offers aim to promote solidarity and to help families to deal with topics such as illness, death, death and grief.在一天中，每个受影响的孩子都会得到志愿者的支持，他们有助于发展年轻人的能力并在艰难的生活状况中为他们提供支持。| Details | |
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