35 years of children's hospice work: A call for better support!
35 years of children's hospice work: A call for better support!
The German Children's Hospice Association (DKHV) celebrates its 35th anniversary on February 10, 2025. Founded in 1990 in Olpe of six families with children who are shortened by life, the association has established itself as a central point of contact for affected families. According to Marcel Globisch, the board of the DKHV, a lot of progress was made during this time, but there was still a lot to do. "We have achieved a lot, but it is important to continue to tackle the challenges," said Globisch.
The focus of the engagement is the annual day of children's hospice work, which also takes place on February 10 and serves the social perception of these important topics. On this day, the DKHV provides a digital platform that acts as a "social hub". Here, numerous contributions from various institutions and committed people who are committed to the concerns of children's hospice work will be found here. A wide audience is reached via Facebook, Instagram and LinkedIn and a social hub is created for the topic.
The current Situation for affected families
The 180 existing children's and youth hospice services are only accompanied by around 3,500 of these affected children. Thorsten Haase, Managing Director of the German Children's Hospice Services e. V., estimates that over 96,000 children and their families are in such a precarious situation. Many parents feel like a supplicant and fight for support and aids to cope with daily life with a sick child.
demands for improvements
The DKHV has set itself the goal of formulating the expectations of the new coalition agreement to ensure that the participation options for affected families are improved. Furthermore, the need for qualified specialists is emphasized to ensure good and reliable care.
The history of children's hospice work in Germany has some milestones. In 1998 the first inpatient children's hospice, the Balthasar children's hospice, opened in Olpe. This was followed by the foundation of the German Children's Hospice Academy and the first forum for children's hospice work in 2005. The increasing recognition and support is positive, but demand continues to exceed the offer, which underlines the urgency of reforms.
In child and youth hospice work, support is not only offered in the last phase of life, but also over a longer period of time to offer the families concerned. However, the existing help structures cannot adequately meet the legally anchored entitlement to outpatient support.
The DKHV and its partners are committed to establishing a needs -based range of child hospice accompanied throughout Germany by 2035. The changes that are sought should help to illuminate the social dark field of over 96,000 affected families and to provide them with the necessary support.
| Details | |
|---|---|
| Quellen | |